Diabetes knowledge, confidence and management at baseline
| Young person | Parent/carer | |||
|---|---|---|---|---|
| Intervention N=159 | Control N=168 | Intervention N=156 | Control N=169 | |
| Management | ||||
| HbA1c (venepuncture) | ||||
| Mean (%) (SD) | 9.9% (1.5) | 10.0% (1.5) | – | – |
| Mmol/mol mean (SD) | 85 mmol/mol (16) | 86 mmol/mol (16) | ||
| Number of severe hypoglycemic episodes in last month; n (%)* | ||||
| 1 | 12 (7.6) | 13 (7.8) | ||
| 2 | 2 (1.3) | 2 (1.2) | ||
| 3 | 1 (0.6) | 1 (0.6) | ||
| 12 | 1 (0.6) | 0 | ||
| Number of times admitted in past 6 months; n (%)* | ||||
| 1 | 23 (14.7) | 16 (9.5) | ||
| 2 | 0 | 2 (1.2) | ||
| 3 | 1 (0.6) | 1 (0.6) | ||
| 10 | 1 (0.6) | 0 | ||
| Number of times attended diabetes clinic in last year; median (IQR) | 4.0 (3.5, 4.0) | 4.0 (3.5, 4.0) | ||
| Visit hospital doctor most/every visit; n (%) | 130 (89.0) | 142 (88.8) | ||
| Visit diabetes nurse most/every visit; n (%) | 139 (92.1) | 158 (95.8) | ||
| Visit dietician occasionally or more often; n (%) | 129 (92.1) | 129 (84.9) | ||
| Visit psychologist occasionally or more often; n (%) | 16 (14.7) | 19 (15.5) | ||
| PedsQL—general; median (IQR) | ||||
| Physical health summary score | 90.6 (84.4, 96.9) | 90.6 (81.3, 96.9) | 89.1 (78.6, 93.8) | 87.5 (78.1, 96.9) |
| Psychosocial health summary score | 83.9 (75.0, 91.7) | 81.7 (70.0, 90.0) | 76.7 (63.8, 86.7) | 75.0 (61.7, 85.0) |
| Total score | 87.0 (76.1, 92.4) | 84.8 (75.0, 91.3) | 79.3 (70.1, 89.1) | 80.4 (68.5, 88.0) |
| PedsQL—diabetes module; median (IQR) | ||||
| Diabetes score | 62.5 (50.0, 77.3) | 61.4 (50.0, 72.7) | 56.8 (45.5, 68.2) | 54.5 (43.2, 65.9) |
| Treatment 1 score | 75.0 (62.5, 87.5) | 81.3 (62.5, 93.8) | 62.5 (43.8, 75.0) | 62.5 (50.0, 75.0) |
| Treatment 2 score | 85.7 (75.0, 92.9) | 87.5 (71.4, 96.4) | 78.6 (65.0, 89.3) | 75.0 (64.3, 91.7) |
| Worry score | 75.0 (50.0, 91.7) | 75.0 (58.3, 91.7) | 66.7 (50.0, 83.3) | 66.7 (50.0, 83.3) |
| Communication score | 75.0 (50.0, 91.7) | 83.3 (66.7, 100.0) | 66.7 (50.0, 100.0) | 75.0 (50.0, 100.0) |
| Diabetes family responsibility questionnaire; median (IQR) | ||||
| Family responsibility total score | 35.0 (31.0, 38.3) | 36.0 (32.0, 39.0) | 31.0 (27.5, 35.0) | 31.8 (28.0, 35.0) |
| Strengths and difficulties questionnaire; median (IQR) | ||||
| Strengths and difficulties total average impact score | 0.0 (0.0, 0.0) | 0.0 (0.0, 0.0) | 0.0 (0.0, 0.0) | 0.0 (0.0, 0.0) |
| Normal; n (%) | 139 (89.1) | 145 (89.0) | 126 (81.8) | 138 (82.1) |
| Borderline; n (%) | 2 (1.3) | 3 (1.8) | 4 (2.6) | 5 (3.0) |
| Abnormal; n (%) | 15 (9.6) | 15 (9.2) | 24 (15.6) | 25 (14.9) |
| Body weight and insulin; median (IQR) | ||||
| Happiness with body weight | 8.0 (5.0, 9.0) | 7.0 (4.0, 9.0) | – | – |
| Number of times skipped insulin in last month; median (IQR) | 0 (0, 2) | 0 (0, 2) | – | – |
| Ever skipped insulin to lose weight; n (%) | 8 (5.0) | 9 (5.4) | – | – |
*Data provided by case note review.
PedsQL, Pediatric Quality of Life Inventory.