Table 2

Principles of biobanking in underserved Latino communities

PrincipleDescription
1. Community engagementA Latino biobank created by an academic institution should involve engagement on multiple levels with participants, community representatives, and clinical partners to ensure projects using biobank data and patients provide benefit to the community.
2. Cultural appropriatenessA Latino biobank should be culturally appropriate in the context of the nature of the local Latino community and involve research staff who are bilingual and are culturally embedded in the local community.
3. Community partnershipA Latino biobank undertaken by an academic institution should be a partnership with a limited number of community clinics that primarily serve the community. Local Federally Qualified Health Centers are good examples of such clinics.
4. Broadest impactData and biospecimens should be collected in a manner consistent with consent for use in future studies to allow access to as many approved investigators as possible to broaden the impact of the biobank to the utmost extent.
5. Joint governanceClinic staff and academic investigators should have joint and equal input into the conduct of the biobank and ancillary studies.