Parental Expectations in the Care of Their Children and Adolescents With Diabetes
Section snippets
Purpose of the Study
The purpose of this study was to develop a broad overview of what parents of children with type 1 diabetes said about their relationships with health-care providers. Specifically, we wanted to gain a better understanding of the characteristics of interactions that were perceived by parents as helpful and those that were viewed as unhelpful in supporting them and their children to live successfully with diabetes.
Study Design
This project involved a four-stage mixed qualitative-quantitative methodology consisting of focus groups, a survey, and in-depth interviews. In each stage of the study, a new level of insight and depth was added to the results of the previous stage to develop an understanding of parents' perspectives of living well with diabetes. Earlier stages of the study were reported previously (Ginsburg et al., 2005). This article presents the results of the fourth and final stage of the study, which
Results
Three primary themes emerged as parents described the characteristics of a relationship with their provider, which helped them to successfully negotiate the challenges of living with diabetes. The first theme, laying the foundation, illustrated provider qualities and characteristics of interactions that set the stage for a successful or ineffective alliance with the family. The second theme, providing clinical care, summarized the clinical systems and therapeutic interventions that parents
Discussion
Parents in this study offered insightful advice to providers in regards to the relationships and interactions they hope for with their child and themselves as they live with diabetes. The theme, laying the foundation, outlined provider qualities and characteristics of interactions that were core to a successful working relationship. The overall demeanor of the providers when they entered the room seemed to have a subtle but important impact on the parent's and child's initial engagement with
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Underrepresented Voices: Impacts of Social Determinants of Health on Type 1 Diabetes Family Management in Single-Parent, Black Families
2022, Canadian Journal of DiabetesCitation Excerpt :Accordingly, in a survey study including 98 Black parents, assessing factors that contributed to better T1D family management, parents cited “team does not judge or blame family” as one of the 30 most prioritized factors (18). Similarly, a single qualitative T1D study of racial minority parents showed that parents desired relationships with providers who “engaged families as partners,” and well-received or successful provider communication as being empathic and that which established a “level of collaboration marked by mutual respect and trust” (36). This finding of frictional clinical relationships has valuable care implications and deserves further investigation.
Valuing technology: A qualitative interview study with physicians about insulin pump therapy for children with type 1 diabetes
2016, Health PolicyCitation Excerpt :Technology can serve as a way of illustrating their involvement in the provision of up-to-date or ‘cutting-edge’ treatments [39–42]. In turn, the therapeutic relationship between providers and patients/families may be strengthened when there is a perception that providers are knowledgeable and share information about recent research and technological advances [43,44]. The aim of this study is to understand why pumps have been broadly adopted in order to inform optimal practice and the development of strategies to deal with pressures to adopt new technologies into practice.
Parent Experiences Raising Young People with Type 1 Diabetes and Celiac Disease
2015, Journal of Pediatric NursingCitation Excerpt :Refer to Box 2 for a list of specific resources. Similar to previous research with parents raising youth with T1D (Howe, Ayala, Dumser, Buzby, & Murphy, 2012; Smaldone & Ritholz, 2011), our participants thought it was important to have a team care for the child/adolescent and recognized supportive provider relationships assisted them successfully meet challenges. Our participants also believed health professionals were knowledgeable and available, cared, did not make them feel guilty, and helped them frame the disease with the child in a positive manner.
Balancing parental involvement with adolescent friendly health care in teenagers with diabetes: Are we getting it right?
2014, Journal of Adolescent HealthCitation Excerpt :This is understandable and possibly reflects a more general conflict associated with parenting any adolescent; a delicate balance of knowing how and when to step back and allow children increasing independence while simultaneously supporting them through the inevitable learning curve of life and the risks that this entails. Qualitative research indicates that parents are acutely aware of the responsibility that their children will need to take on in the future around their diabetes management [35]. Transition to adult diabetes services is known to be a difficult process for adolescents with T1DM to negotiate successfully.
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