Diabetes-oriented learning family intervention (DOLFIN): a feasibility study evaluating an intervention for carers of young persons with Type 1 diabetes

Diabet Med. 2014 Jan;31(1):55-60. doi: 10.1111/dme.12333. Epub 2013 Oct 22.

Abstract

Aims: To describe the development of an intervention for parents and carers of young people with Type 1 diabetes and assess the feasibility, acceptability and emerging clinical themes.

Methods: Participants were carers of young persons aged 10-18 years with a diagnosis of Type 1 diabetes of more than 12 months' duration in two inner-city South London hospitals. Carers were invited to attend six sessions of a group workshop where they received emotional support, diabetes education and were taught motivational interviewing techniques to support their child.

Results: Out of 106 eligible participants, carers of 31 young people with Type 1 diabetes were recruited, 17 of whom 'completed' the intervention (attending four or more sessions). Participants discussed a variety of themes in session, including the increasing difficulty of diabetes management as children grow older, parenting techniques for managing diabetes in the home and the emotional challenges of having a child with a chronic illness.

Conclusions: Engaging parents in a carer intervention for Type 1 diabetes was a challenge, but parents who participated appeared to value the programme. Future interventions for carers need to take account of carers' wishes and expectations in order to maximize user uptake.

Publication types

  • Evaluation Study
  • Multicenter Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adaptation, Psychological
  • Adolescent
  • Adolescent Behavior / psychology
  • Adult
  • Caregivers / education*
  • Caregivers / psychology*
  • Child
  • Child Behavior / psychology
  • Diabetes Mellitus, Type 1 / nursing*
  • Feasibility Studies
  • Female
  • Health Education / organization & administration*
  • Humans
  • London
  • Male
  • Middle Aged
  • Program Development
  • Social Support*
  • Stress, Psychological* / etiology
  • Stress, Psychological* / prevention & control
  • Surveys and Questionnaires
  • Time Factors